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We want to help families affected by congenital heart defects not only financially, but spiritually, as well. We give God the praise for watching over our children and also the doctors that work on their special hearts. Therefore, we want to be able to pray for the children that are in need.
"And the prayer offered in faith will make the sick person well;" ~James 5:15(NIV)
" For where two or three come together in my name, there am I with them." ~Matthew 18:20 (NIV)
If you have a child that is in need of prayer, please contact us and we will add them to our prayer list. You can also leave us a message using the "Guest Book" link.
Pray for the families of Angels...
If you believe in the Lord Jesus Christ and are a born again Christian, you know that after you leave this earth, you will be joined with Jesus and all the loved ones that went on before you! Don't waste time making this decision! Admit to Jesus that you are a sinner! Believe that He died for your sins! Ask Him to forgive you of your sins and come into your life! It will be the best decision you can make and you will NOT regret it!
"For God so loved the world that He gave His only begotten son, that whosoever believeth in Him should not PERISH but have everlasting life." ~ John 3:16
Ava Lavere; Evanston, IL
Ava was born with HLHS, DORV, along with other medical problems. She had a heart transplant in February of this year but her other organs could not recover from the heart failure and stress. She passed away on June 16, 2010 in the arm of her loving parents.
Please pray for her parents a they learn to live on this earth without Ava. She was an inspiration to everyone she met.
Pray for those facing or undergoing surgery...
Katie Bracken; Whitwell, TN
Katie was born with HLHS and had her Fontan last summer. She has since been battling fluid issues. Katie was sent home after her Fontan with drainage tube in which her parents have to pull fluid off each day. They have learned just the beginning of 2010 that Katie will have to be listed for a heart transplant as her heart is not accepting the Fontan circulation and there is nothing else the doctors can do with her current heart.
Please pray for Katie that she will remain strong and for her parents as they face the months ahead. Pray for the wisdom of her doctors as they get ready to list her sometime in the Spring. Pray that, if it be God's will, her fluid will dry up and a heart transplant will not be needed.
UPDATE: Katie was able to get the chest tube removed and God has kept the fluid away! She is able to stay away from a hearty transplant at this time. Praise God!
Colton was born on November 22nd with Pumonary Stenosis. He is at Cincinnati Children's Hospital on a ventilator and will be undergoing open heart surgery before he is released from the hospital. Please pray that God will keep Colton strong and allow him to come off the ventilator before his surgery. Pray for his mom and dad as they are thrown into the CHD world. Pray they find comfort in knowing that God is with Colton when they can't be. Pray for the doctors to have the knowledge and skills to work on Colton's heart and repair it to their best ability and allow God to do the rest!
Brycen was born on May 24, 2010 with Hypoplastic Left Heart Syndrome. He had his Norwood (1st palliative surgery for HLHS) and was released from the hospital doing well until October 22nd when he went into heart failure and was admitted to Cincinnati Children's Hospital. He was evaluated for the 2nd stage - Glenn - surgery but the doctors said his heart was too weak so they listed him for a heart transplant.
In an attempt to bridge the gap to a transplant, the doctors felt it would be in Brycen's best interest to go ahead and undergo the Glenn. Best case scenerio would be that his heart would recover and he wouldn't need to have a heart transplant for now.
Brycen had the Glenn on November 16th and did well. He is now off the ventilator and is able to now eat. Please pray that Brycen's heart continues to get stronger so that a heart transplant can be avoided. Pray for his family as they are separated with one at the hospital and one trying to work and provide for the family.
Elizabeth Richtman; Rochester, MN
Elizabeth was born on February 24, 2007 with Ebstein's Anomaly. She will be undergoing open heart surgery on Tuesday, October 19th where the doctors will balloon her pulmonary valve, close her ASD and VSD and repair her tricuspid valve. Please pray for her strength, for her doctors to have steady hands and clear minds while operating on her, for her parents as they await word that she is doing well, and for her recovery.
Jaylynn Swafford; Manchester, KY
Jaylynn was born with Pulmonary Atresia, Intact Ventricular Septum and an absent tricuspid valve. She has had 2 of the three palliative surgeries at CCHMC and the doctors feel she may be ready for the Fontan. Jaylynn will be having a clinic visit, including an echo, on September 23 at CCHMC where the doctors will also discuss the Fontan. She also will have a heart cath to check her pressures.
Please pray that Jaylynn's heart is strong and she is able to have the Fontan, if it is God's will.
Brayden Otten; Ohio
Brayden was born on March 9th with several heart defects: ASD, Heterotaxy (heart on right side of chest instead of left), TAPVR, and Pulmonary Atresia. He underwent his second open heart surgery on July 13th and did great with the surgery itself. He was set to come home a week later when it was discovered that his incision had become infected. He received IV antibiotics and has been doing great at home.
Brayden will be having a heart cath on March 19th to check on the growth of his pulmonary arteries. Please pray that God has allowed the arteries to grow to the size that the drs. are needing them to. Pray for Brayden's safety during the cath and the hands of the drs. working on him. Pray for his parents to have comfort and strength as they wait on the day to come and during the cath itself.
Jennifer Meadows; Culloden, WV
Jennifer recently had open heart surgery at Cincinnati Children's Hospital. She was born with Tetralogy of Fallot and Pulmonary Atresia. She spent 6 months at CCHMC recovering from surgery. She also had a trach and G-tube placed for feedings.
Jenna has been doing good at home. They had another short stay at CCHMC when she got a respiratory virus. Pray that Jenna stays healthy at home, that her lungs will continue to heal and get stronger. Pray for any upcoming testing she may have.
Dillion Hearne; Dry Ridge, KY
Dillion is 4 years old and has a VSD. He had two holes in his heart but one closed on its own. They are now considering closing the VSD as it is affecting his lungs. Dillion went back to the cardiologist in February and they feel he will still have to have these closed surgically but want to want another 6 mths. Please pray that God closes the hole for them so that no medical intervention is needed.
Luke Landrum; Lexington, KY
Luke is 2 years old and has HLHS. He has had his Glenn surgery and also had to have his Tricuspid Valve repaired the first of this year. His heart also goes into atrial flutter and he has required several "shocks" to get his heart back into normal rhythm. Medication has since stopped controlling the atrial flutter so his cardiologists have referred with his surgeon at Mott's Children's Hospital in Ann Arbor, Michigan, and they have agreed that Luke needs to have an ablation procedure where they will block the extra pathway to his heart that is causing the rhythm problems. They have also decided to go ahead and do the Fontan (3rd surgery for HLHS children).
Luke had the Fontan surgery, maze procedure, and a pacemaker implanted on November 19th. He is at home and doing great! He is gaining weight and has not had any issues with the atrial flutter.
Kendall Conley, Carrollton, KY
Kendall (our Secretary, Cydney's, daughter) has completely recovered from her body becoming septic after having the flu, pneumonia, and a bacterial infection. She spent more than a month at Cincinnati Children's Hospital. Her kidney function has returned to normal and her and her family were given a Make a Wish trip to San Diego, California so that Kendall could go behind the scenes at their zoo. She wants to be a veterinarian! With God behind her, Kendall can and will do anything she wants!
Kendall had a heart transplant at 4 mths of age due to dilated cardiomyopathy and through all of this, her heart has remained strong! Her family continues to give God the praise and glory for all that He has done to get Kendall to where she is today.
Leah Kate Fitzgerald, Owenton, KY
Leah was born in May of 2008 with Coarctation of the Aorta, ASD, and problems with her mitral valve. She had surgery to repair her aorta but the doctors at Cincinnati Children's Hospital feel that the hole will close on its own. Her mitral valve will need open heart surgery at some point, the doctors just aren't sure when. Pray that God will close the hole and fix her mitral valve without any surgerical intervention!
Cassidy Clifton, Carrollton, KY
Cassidy is almost 7 mths old and has dextrocardia, transposition of the great arteries, pulmonary valve stenosis, single ventricle double inlet and had the 2nd of 3 surgeries on December 3, 2008. She is doing great! Please pray that God will continue His work in Cassidy's life and keep her heart strong!
UPDATE: Cassidy had her Fontan this summer and did great! Pray that God will continue to keep Cassidy's heart strong.
Isaiah Columbia, Owenton, KY
Isaiah is almost 4 years old and has DORV, HLHS, and mitral atresia. He had his Fontan, the 3rd open heart surgery for HLHS, on July 2, 2008 and it didn't go well. After coming off bypass, his lungs didn't accept the extra blood flow caused by the Fontan circuit and after struggling for over 2 hours, the surgeon made the decision to take the Fontan down. He was in the OR for 12 hours and the doctors said he would have a rough recovery period. God again worked miracles in Isaiah! He never had that "rough" period. He didn't have to be opened back up due to bleeding - the bleeding stopped! He didn't swell like the doctors were anticipating and came off the ventilator without any trouble 4 days later! Isaiah spent a total of two weeks in the hospital and is now at home recuperating.
Please pray that God will continue to work His miracles in Isaiah. The doctors don't know, and probably will never know, why Isaiah failed the Fontan. God has other plans for Isaiah's life. Please pray God will keep his heart strong for many years to come! Isaiah's parents don't know his future, but they know who holds it!
Joey Callahan, Williamstown, KY
Joey was born with ASD and BAV. He had surgery to close the ASD and is now awaiting surgery for the BAV. Joey needs prayers for weight gain so that he can have the surgery to fix his bicuspid valve. Pray there are no underlying reason why he can't gain weight.
Please also pray for Joey's mom, Michelle. She is the organization Vice-Chairman and was recently diagnosed with cancer. She is undergoing chemo treatments and just ended her radiation treatments. The surgeon will not remove the tumors until the cancer has quit spreading. She is one of the founders of the organization and we pray God will give her the strength she needs to keep fighting. Pray also that God will give her family strength as they watch her go through so much.
Hannah Robbins, Carrollton, KY
Hannah was born with low atrial rhythm, bradycardia, ASD and VSD. The ASD and VSD have closed and she had a pacemaker put in the first of this year to help with the low heart rate.
She had to be placed on a beta-blocker medication to control the rapid heart rate that she started having after her pacemaker was implanted. This is very unusual because the reason she had the pacemaker put in was that her heart rate was too low. Hannah has just recently been released from the cardiologist for 6 months! This is the longest she has been able to go without seeing them. Pray things remain stable for Hannah.
Maddie Morris; Lancaster, KY
Maddie was born with ASD and VSD. She had them closed by open heart surgery a couple years ago. She is now having episodes of tachycardia (fast heart rate). They were told that this could happen after surgery as sometimes the patch to repair the ASD gets wrapped around the electrical part of the heart. She is wearing an event monitor to record each episode and her cardiologist will determine what needs to be done. She may have to be placed on beta blockers to control the extra beats. Please pray that God will take care of the beats before anything has to be done. God is able!
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